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But that hasn't prevented the 2 knee surgeries, being on seizure medication for 5 years, or the unbelievably high Triglycerides that has brought me to the Cardiologist for the last 9 months on top of other things. In the last 10 years I feel like I've had every test imaginable. Ultrasounds, MRI's, CT Scan's, EKG's, a bazillion blood tests, cortisone injections, on and on. I won't even go into how difficult this makes it to get insurance. Absolutely impossible.
I've always felt weird about telling people about my partial seizure disorder because I feel like people think I'm a weirdo somehow, or they're afraid I'm going to have a seizure in their presence or something which is certainly unpleasant. I've only had one grand mal seizure in my life, on the New York subway which was a blast. The others have all been of the smaller sort where I retain consciousness. I remember in college a few times I had them while I was driving alone. I didn't know what was happening at the time. Had I known they were partial seizures, I may have acted before the big daddy happened in 2004.
All of this weighs on me and frustrates me to no end. I feel relatively helpless and keep fearing what could possibly be next. Just when I think there is a good stretch ahead, something gives.
But I say all of that because today is a good day. After 5 years and no seizures, the time has come to discontinue my medication which I have as of Monday. That is a large step and it feels great. Certainly frightening as I wait to see what will happen, but the end of a season nonetheless.
On top of that I have a GREAT cardiologist who has taught me, encouraged me, challenged me, and has brought all kinds of blessings to our lives in the last 9 months. I am very thankful for her. Today she gave me the news that my triglyceride level has gone from 560 to 215 in the last 9 months due to a huge diet change, exercise (not as much due to this), and a few medications. The good news is, in 6 weeks it looks like I could break the 150 mark at which point we would start to discontinue some of the medication and I wouldn't have to go back for a year!
Once again I'm praying for a good stretch of health for the rest of 2009! I'm feeling confident that it's going to happen this time!
3 comments:
Dustin,
As someone who has a chronic illness and had a stroke at 25 I can relate to the feelings you talked about in the post. I am glad you've gotten some good news & I'll be hoping for a healthy '09 and beyond for you.
Dustin,
I never knew your health was such a huge concern. (Not that I would have expected you to go around announcing it on campus or anything. You're just not that guy.) Nicole and I will be praying for you! I hope this is the start of some wonderful years ahead!
Have you tried shark cartilage?
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